disclaimer or something

A mummy-hand holding, (former) biker gang affiliating, hippie influenced semi crunchy granola mom's ramblings and reminisings on an off-kilter life

Friday, November 7, 2014

the living puzzle

My child is a living puzzle. His speech and language pathologist (slp) says he is like swiss cheese, with lots of holes. This week made it very apparent.

He can barely compose a sentence, comprehend someone, or survive an hour without a meltdown tantrum. And yet, he can write most of his name and draw people, a skill a year ahead of his age. He even labeled his drawing, with specific letters of people in the family. Wow kid, you blow me away.

But then.....he had a speech and language asssessment that nearly left me in tears. He could not follow the simple directions. He could not answer "what is your name". Sure, when asked, "say one" he counted to twenty (another super skill set of his) but then when she said, "say dog" he mimicked, "say dog". She pointed at another picture, "boy" and he stared blankly. She had never had a child his age who needed her to say "say", every single time. He lacks most verbs. He cannot finish a sentence (such as, the teacher shows a boy putting the ball under the table and says, "the boy" , he is to say "puts ball under a table" or something like that. He just stared. She repeated "the boy" and he would mimic her, or point to something unrelated, "like this one.") Sure, he can make the correct sounds; in fact, he is a bit ahead with his flawless Js, Shs and Chs sounds. But he cannot quite.....have a simple conversation. Sure his speech has grown leaps and bounds (he never would mimic before, and just yesterday he learned grocery, take, lettuce) but yet he seems leaps and bounds behind.
My snuń£gle-buddy children

Add in this....je ne sais quois of his and man. He is a puzzle. He tells anyone who is crying, "it's ok" and brings them toys, and yet he pinches and hits everyone.  He is not fully potty trained, but can remember certain things as if he has a photographic memory. He has epic meltdowns and yet he seems to be the popular kid.

Sometimes, I look at my one year old and think, oh no....someday soon, you will surpass your big brother...how will I deal with that?

This new SLP only treats kids with speech/language issues, nothing else. She even sees that there is a je ne sais quois with him and that that will likely mean he cannot get speech therapy (drats) but she is willing to bend the rules and give him a try.

Meanwhile, my school district is in violation, over 50 students are awaiting special ed assessments (I am number 51!). It has been 2 years since I noticed my son was a bit different and all I have gotten is a speech assessment, NOTHING ELSE. And not for lack of trying. But I am determined to get him the help he legally needs.

I fear him growing up, being one of the "slow kids", feeling bad about himself. This fear makes me like a deer in headlights. But I know no matter what, I will figjt to the death to get him help (even if it seems like he might be in high school before he gets any help) and that no matter what, he is my special little puzzle guy. Somehow it will all work out, even if it seems I am stumbling backwards, cursing everyone to get their shit together and give a damn. This mama bear is about to roar and protect her baby cub!

A labeled drawing of the family